Story time on how I found out I had Lupus 💜🦋

Published: Sep 11, 2024 Duration: 00:04:05 Category: People & Blogs

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hey guys I'm going to give you a story time on how I found out I had lupus I was dnos with lupus in December of 2023 I honestly feel like I had it in 2020 um speaking of 2020 we were going through a pandemic I had lost my sister so I was suffering from anxiety depression grief and overall the pandemic so I really wasn't listening to my body some of the signs that I had were things like brain frog tingling numbness headache rashes weight loss weight gain joint pain these are just some of the things that I was going through at the time um again like I said I didn't think too much of it because of all the things that I was going through in my life I just figured it had to do with those things um living with lupus is a up and down thing um you can still have a normal life with lupus you basically just have to find what works for your body everybody body is different so you can't necessarily go off of what somebody else may have going on that's the thing with lupus you know we all have different medications different routines and you know things that go on with having lupus so again it's just not talked about enough it's more people being diagnosed with lupus a lot of people don't know what it is don't know where it came from um and just don't understand the importance of it it's a silent disease lupus is a silent disease people look at me and say oh you don't look sick I wouldn't think you had lupus you know I hear that often and again it's a lifestyle thing it's the way you carry yourself the way you take care of yourself and with me I do my own research I do things that work for me I recommend things to my doctor and my doctor and myself have this this type of relationship where she wants to prescribe something and you know I do my research and I'm just like you know I don't feel like that's going to work or you know I want to do something different so I'm able to give her that feedback and do what I feel like works for me I know there are some doctors who would just prescribe and prescribe and prescribe but one thing with having this disease you have to speak up for yourself and do what works for you and not necessarily what you know they want you to do but I will say you do need to listen to your doctor and just have that understanding you know of how you want to you know live your life I have SLE which attacks all of your organs yes it sounds scary but again lupus is something that's livable you can live a lupus have a normal life you just have to make a lifestyle change and find the medicine that works for you um lupus is not talked about enough I didn't know anything about lupus until a couple years ago and once I was diagnosed with it I did my own research I talked to my doctors I joined support groups I talk to different people and with doing that I found out that everybody is different everybody body is different their treatment may be different I normally have lap work done every 90 days because of my thyroid um one time I went in to get my levels checked from my thyroids and my primary care doctor saw something in my lab where she was concerned and she had me to come in to do a lupus panel which came back positive so that's how I found out I had lupus there is a test that you can do to find out if you have lopus I just wanted to get on here and share my story and maybe it'll help somebody thanks for watching bye

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