HOW I FOUND OUT MY 7 YEAR OLD HAS LUPUS 😢(Storytime)

back with another video so in today's video this is a very sensitive video this is very emotional video I don't even know why I did my makeup but it was already done and it was something that I thought about um yeah so this is a very emotional video If y'all read the title you already know what I'm about to be talking about um so yeah I'm going to get right into it but just to clarify what lupus is lupus is a autoimmune disease that can affect the different organs in your body it affects your kidneys it can affect can affect because there's different types of lupus there's one that can affect your skin there's one that can affect your kidney kidneys and there's which can cause kidney failure and there's also one that can affect um your lungs and stuff like that um and my daughter she has I forgot the exact term for it but she has the one that affects her that can affect her skin lungs and kidneys that's the one that she has and um if I'm not completely you know somebody out there knows exactly what it's called or anything just you know write it in the comments and yeah speaking of comments make sure you guys like comment and subscribe thank you but yes so getting into this getting straight into this just a backstory my daughter she is 7 years old her name is Amari I have three children like I told you guys in the other videos and if you have not seen those videos um you can go watch them and come back to this video but um in the other videos you also will see her a little bit but anyways I have a 10-year-old daughter named iie and then I have a seven-year-old which is the one I'm talking about right now I'm going to be talking about right now her name is Amari and then I have a six-year-old um my baby boy his name is Isaiah and um yeah so I have to take a breather okay so just the backstory Amari was born full term she didn't have um any conting issues when she was born although um the doctors did say when I I was pregnant that they um said that they might have saw a hole in her heart but that turned out to be fine and they also said that um she might come out with Down syndrome and which she came out fine but at that time when she um when they were trying to say she might have those things I was just obviously I was like sad you know and and I was praying about it and I was just hoping you know praying and hoping for the best I'm like okay God if these if these are the cards I'm going to be dealt with give me the strength to you know what I mean to do it and um yeah you know but she came out you know fine you know and um yeah so she was born full term she actually was born I think a few day like three days before the her actual due date um yeah and um the only thing that was wrong with her was she had a like after I took her home like at the hospital they didn't notice this but like I think a couple weeks or a month later I realized that she had like a inent like her chest was caved in a little bit so that's when I took her to the you know doctors and I you know told them my concerns and I forgot the word for it and if I do remember it I will write it put it in but um yeah they were like pretty much she can grow out of that and if even if she doesn't um grow out of it a lot of times it doesn't really affect people and if it does affect you it'll be your lungs that it'll affect because pretty much the bones or can like touch your lungs you know as they like keep if they decide to keep sinking in and so cave it in for a lack of better words and um you know would ever so so I was so like talking about this is just like already and I haven't even got into it but yeah so you know they were say they were saying that or whatever so obviously you know even though they said that like you know most likely she's going to be fine it still kind of like bothered you as a parent because you see somebody you know your baby's chest is Cav in like you know so I just would watch her m to her you know and stuff like that and she was fine you know she's still fine and with you know concerning that and so sorry y'all my setup got a little yeah so so yeah she's still fine concerning that but um last year 2023 Amari around September a year ago it's September right now um September October Amari started to comp complain of the stomach ache and of course I'm thinking like it's just you know a stomach ache I'm trying to figure out exactly what's wrong is it gas did you eat you know eat something that hurt your stomach like you know things like that the minor things you know is what I was thinking it might it might be but every time we would handle each of those and we crossed those out it was like okay that's not it that's not it that's you know that's not working that's not working I not working so I'm like what is going on with my baby so I love taking her to the doctor and then they were like oh she it seems like they felt her stomach they pushed it they're like oh it seems to us like there is she's constipated so I'm like constipated okay if that's what y'all say I you know all right so um I was just doing what I was supposed to do giving her plums apple juice applesauce you know lots of water just to help her you know get it out so that wasn't working and she was like you know still like my stomach hurt but she wasn't crying about it it was just like what it seemed like to me was it was like a nagging pain you know so I was like okay so took her back to the doctor they did x-rays on her stomach and they're like yes it's constipation so I was like okay so yeah I did what I was supposed to do and did the say like okay I'm going to watch you know uh watch what she eats and watch her bow movements and things like that and help her whatever okay she seemed to me to be getting better but I guess she just wasn't complaining so much about it I don't know if my baby just got like used to the pain and I hate to say that but yeah eventually she started telling me again like my stomach her and at the time I was working at her school so she was missing school and I thank God that I was working at her school because I was able to you know monitor her and like well she didn't feel well I had to leave and so or whatever so whatever so that happened so um she um you know I would take her I would take her out when she didn't feel good and stuff like that it was just a lot so I took her to the doctor and the doctor was like nothing you know I don't see anything wrong with her it seemed like it's just constipation again then I took her to took her to urgent care and then I took her to ER and everywhere and there nothing so I'm like this is my baby you know what I mean so at this point it's already been a few months of us dealing with this situation and you know also they you know um she got a referral to go to a specialist and what they said was was just put her on a certain type of diet and watch type of food she eats just to see like you know if there's a change which I had already done that but I just you know I did it a little bit more thorough thorough or or whatever so that happened so I'm like aen getting better so then she ends up getting um these little what I thought were bites on her hand and I'm just like okay but I didn't put those two together you know what I mean like stomach ache bites you know so I'm like okay she's you know she has bites on her so I'm like where is she I'm just like where is she getting this okay she must have got this from school or something she must have touched a plant or something that I don't know had a reaction okay it must be the detergent oh it must be my dog you know what I mean like I'm thinking of all kind of things that it can be so the bites weren't getting better they were getting worse and they started to spread so then I took her to her primary care again and they were like oh it looks like these are uh mosquito bites and I'm like okay mosquito bites they're like yeah or uh what's it call it flea bites and I'm like well my dog doesn't have fleas but okay so I'm like all right so they gave me this cream or whatever this stuff whatever and told me oh just spray with the bug b stuff and whatever so I was doing everything that they told me to do so I'm doing all those things and I'm just like okay ain't nothing getting no better like it a't getting no better so at this point I'm frustrated and I'm hurting for her you know what I'm saying I'm just like dude like she's getting all these bites everywhere then her stomach has been bothering her and then now her head starts hurting I'm just like okay but again I didn't I didn't even connect those dots I didn't think anything you know so I'm just like oh giving her Tylenol whatever thinking it's her allergies cuz she has really bad allergies like you know whatever so I'm doing all that still nothing nothing was helping nothing like the stuff I was doing to try to fix her stomach problems wasn't helping what I was doing to try to fix her bites bites wasn't helping the headaches wasn't helping wasn't going away so at this point I'm just like real frustrated I'm just like okay like my baby you know so then now it gets to the point where she's not really eating like while she's EA eating she's either like not hungry or she'll be hungry and then she'll try to eat and then while she's enjoying her food she'll be like I can't eat no more like it you know she can eat little more I'm like okay what's going on so so then at this point you know she's not able to really eat and my baby you know she's at the time she was very petite like she's always been petite she was born really little she just always been like that and so I'm I'm just like you know and she's never been a big eater but she's always been like a she's always been like you know she eats throughout the day small you know small things throughout the day so I'm just like okay so now at this point you know her like I said her stomach things are getting worse with that and then the bites are spreading and then her headache so I'm just like what is going on so I take her um again to the I took her to the Urgent Care this time because at the at that time she was scratching the bites and then the bites were getting to a point where they were looking like bruises literally they were looking like purple and then they were looking like kind of like a burgundy I'm just like what is going not even like a red it was literally looking like burgundy and like purple and I'm just like what is going on with my child at this point I'm like crying I'm praying I'm doing everything like I'm like what's going on you know like all I'm thinking at the time I'm thinking like everything is just coming against my child you know what I'm saying it's like everything's coming against her like what the heck like it's just like you know so at night I'm crying and I'm just praying over her praying for her and just like you know what I'm saying put it in prayer request that church I'm doing everything trying to figure out like what is wrong with my baby you know God like heal my child like you know okay so and it was just like you know nothing at the time like I couldn't the doctors nobody knew anything that was wrong with her or nothing so you know so then um I took like I said I took her to the Urgent Care cuz they was looking like that and then the Urgent Care lady she comes in there she was like what the like you know I don't Cur sorry but yeah she was like what the and I'm like and U I'm like what's going on and she was like those look like scab Beast these are scab Beast I'm like What's scabies cuz I a never heard of Scabies before never so I'm like what what is that so at that time I'm calling family like whatc and my family members are like uh no you know no offense to anybody to the homeless or nothing like that but they were just like normally you see that happening even the uh the doctor the nurse said you um only really see that with people who are homeless you know like it's like a really like rare thing you know what I'm saying and it's just like it's for people that are like really dirty back for lack of better terms or words you know and so they were like I don't know how she got this they're like you know and then I'm thinking like okay maybe she got this like from church because there's a lot of kids in the church you know what I'm saying and then we have church is a open place people can we have different people coming you know what I'm saying so I'm like maybe you know I'm just trying to because we've had several things happen to where like chickenpox spread we had chicken that everybody had the chicken pox and then you know everybody had got the flu always getting the flu and just different things so I'm just trying to think and you know I'm just like maybe from the church whatever so at that point I didn't even care though I'm just like help my baby to feel better so they gave me this cream and the cream that they gave me it was just like they were just like okay you know you put this this cream on and then after like after you put it on you only leave it on for 8 hours like you got to time it on the doot then after 8 hours you literally have to put her in the shower and wash her up dry her off and put it on again and I'm just like what the heck they're like you have to do this and then if things don't get better bring her back in I'm like oh my gosh so I'm like my poor child so I had to so I was doing that and doing that and doing that sorry y'all this just like everything's coming back but yeah so I'm doing that and doing that like they told me to do and everything sometimes I even had to wake her up out of her sleep and everything cuz I'm just trying to make sure I'm following all the instructions and everything correctly you know so I'm doing that she's still having her stomach issues she's still having her headache you know things are still going on so then um I take so whatever so I take back to her primary care because at this point those aren't even getting better if anything they're getting worse they're started to scab up like for the bruises they turn to open one two scabs I'm like what in the like what's going on like you know I'm just like really really scared you know I'm taking her to Every Which doctor again it's like again and again missing a whole lot of school a whole lot I'm just like what's going on so then um you know they still don't know what's going on whatever they we try to figure it out and then finally it was like my baby had to get really really bad for them to really really look into it this ain't no shade or nothing towards no doctors or nothing that's just it is what it is that's my experience and what happened and my child's experience so they it got really really bad to the point where my daughter ended up uh being very IC you know to the point where she wasn't eating she wasn't she wasn't doing anything she didn't even want to talk you know what I'm saying she didn't want to talk she just was like just out of me just like that you know and I was just like oh my gosh like it just hurt to see her like that you know and as a mother you want to protect your child like you want to feel like you can protect your child but at the that time I felt like I couldn't help my child all I could do was hold her and hug her and pray for her you know what I'm saying it was nothing that I could do and obviously take her to every doctor you know so when so when that happen and she started to get like that that's when I um the day like okay so in the daytime that's when she started feeling like that like towards the morning time I noticed she was acting really lethargic so I was giving her pedy like just trying to do and then when night came I looked at my husband I I was like about to go off into a sleep I tapped him and I looked at him I said Steve my husband I said bab we got to take her to the emergency tonight a different one you know which I had already been doing that but I was like even a different another you know so we went and took her to the emergency and at that point I guess seeing like the open wall and seeing all that stuff I went to the back and my husband had to sit out you know sit in a waiting area when I went back there she's laying down on the on a bed on the like yeah on a bed there were like the doctor I just want I forget the doctor was like um he was like does Lupus run in your family and I'm like what and I'm like my mom has it I was like yeah my mom has loopus but why are you asking me that you know what I'm saying like what so he was just like I forgot what he said but I just went like my mind just went like Lord please so then at that point called my husband he was out in a waiting area and I was like Steve they're saying that it might be lopus he was like what it might be Loop why are they saying that and it wasn't that he was mad at them it was just the fact that like he didn't want to hear that as a father you don't as a parent you don't want to hear that so he was like they need to test everything first then like us say with you know what I'm saying what it possibly could be so I'm like yeah you're right whatever so I'm devastated I'm in the back by myself I'm on a phone with my mom and you know what I'm saying everybody and I'm just like crying and I'm just like you know and then they had took an extra of her stomach cuz I'm telling them everything that was going on and they were like it looks like it's her appendix but of I'm I'm like okay it's appendix you know y'all know so they were like we're going to have to take her to another doctor cuz we don't have everything we need here so we have to take her to the other do other hospital sorry so that she can get surgery I'm like surgery oh my gosh so we end up leaving the hospital and um the ambulance came and at this point I'm just like everything was just a blur everything was just hitting me my mind was just like it felt like I couldn't even think straight I couldn't even it was just you know so the ambulance came in and I'm looking at my daughter at that's how my husband came back there cuz he went with and I'm looking at him and I'm just scared you know I'm just worried and I'm just like what the heck and so my husband had drove and I went in the ambulance with her and while I'm in the ambulance I just thank God cuz he surrounded me God surrounded me around good people and I needed that at that time because everything that I was going through if anybody that was around me would have been treating me any type of way or being rude to me or not responding to me you know what I'm saying in a nice way and being nice to me I really I would have lost it you know cuz I already felt like I was inside you know so I was in the ab and the guys were so nice they're talking to me cuz I think they can tell like or maybe that's just their job but they was talking to me and then I was like can I please play gospel music and he was like yeah sure of course yeah cuz I just needed something to play so that I can you know so I started playing gospel music and stuff like that and I was praying inside my head I just started feeling better feeling a little bit better like having a little bit more peace you know but then I would look at my daughter then I would feel the same way again get sad again again cuz it was like she was just laying there just like helpless you know and I'm just like you know like my poor child like what's going on you know and this is my strong girl this is the the brave tough girl that's always jumping off of stuff and hurting herself so many times and not even crying L even if she does cry I mean my baby didn't got bit in the forehead by a dog all kind of stuff has happened to this girl because she just so rough you know what I'm saying and and I'm just like you know everything and I've had so many things happen to her to where she has went to the hospital because she just so she's rough not so many things let not be traumatic but it's like you know a few things have happened to her it has really really scared me you know with her and it's just like you know I never had something like this happen you know every time something was wrong we knew what was wrong and it was we came out okay you know but this I was just like what what's going on you know so anyways I'm just looking at her and I'm just like you know and I'm like I know if she was I knew she was really like I knew she was even weaker than what she looked like and the way because my daughter being am she would be like uhuh what am I in here for she's very very outspoken so I'm just like you know like dang like just I just want calling my baby back to being healthy so we ended up going to the hospital another U going to the hospital and then they saw the x-rays they're like okay they're saying that it's an appendix they're going over everything I'm like yeah they're saying that they were like okay let's do another x-ray hold y' I'll be right back sorry y'all so yeah they uh said we want to give her another ex-ray and I'm like okay cool like yeah I think you should so they're like so that we can see for ourselves what's going on so I'm like yeah so they gave her another X-ray and um sorry it just anyway so they give her another X-ray and then they tell they come back and they're like well on our end it's not showing that it they're like we see why they might think it might be the appendix because I don't know something they saw whatever and then they were like but it's not the appendix and they're like but blood pressure is very low her blood pressure is very low and um and um she has a fever and it was like a Non-Stop fever so anyways they're taking monitoring her checking her blood all this kind of stuff for um I think it was like 2 days [Music] and and um anyways so they're monitoring her checking her you know everything and was pretty much nothing that they could like see and so they were like but this blood type and this blood type levels are low and they're like so we're going to send her to another hospital and I'm like another hospital so they sent her to another hospital and then we went to that hospital that's when um they did a whole bunch of blood test and all this stuff and whatever and they're like and that's when the doctor says well well they brought the Rheumatology the rheumatologist in and she was like well from the looks of this blood type this blood level this blood level that blood level it look like it might be lupus I'm like so I remember I was like you know what Lord I don't care what it is I just want to know what it is you know and so and I was very hard to like you know cuz just no mother no parent wants to know that something bad is going on with their child but at that moment I needed to know what was going on with my child I been needed to know you know so finally um they end up um doing a biopsy on her skin on the um the rash the whatever the scabs and stuff they did did a biopsy they did a biopsy on her kidney they took x-rays of her chest and every her lungs everything her lungs were filled with fluid her kidneys were um failing and her skin um her um the skin biopsy was coming back as yeah it is what it what saying it is it is lupus I'm just like whoa as a mom I don't want to say I feel like I failed her because I did everything that I was supposed to do but at the same time I still kind of felt like I did and it's a hard thing to explain to someone who hasn't been through it you know what I mean and I felt horrible I'm like what because I was always afraid of me getting sick of me getting an illness or something because I lost people that were very very close to me and I watched people that were very close to me suffer of illnesses is my grandmother had passed away a few years ago of cancer and that was the most devastating thing I ever went through in my entire life she wasn't just a grandmother she was more than my grandmother and it was just really hard so and I just felt like I just knew that God would didn't ever allow my children to get sick because God know you know my mom God knows how much I love my kids he would never put me through that you know what I'm saying no I show me real quick it ain't about you it ain't about you you know this is this is aari this is aari testimony this is a marus testimony this is about her you love her that's what I feel like I was tell you love her of course this is your child but this is this is not all about you you know and it clicked you know and I just remember when they were telling me I literally was in the hallway they pulled us out the room away from her right in like kind of in front of the room in the hallway and they told us and as they were telling us she had loopus a earthquake came a earthquake as they were telling us and I was like whoa like that was crazy I don't know how to explain that I don't know it that was something on a different level but yeah I'm like literally as she was speaking it coming out of her mouth and I'm just like wow [Music] and at that moment I felt horrible but at the same time I was happy to know that I we found out what was wrong you know I'm like this this Hospital they they didn't play no games and I'm so very grateful you know so very grateful and you know at that time too it was just really really really hard really really hard on so many different levels and it was just so much to deal with and so little time and I just couldn't believe like I couldn't like my little baby and then for them to tell me you know for her to be seven that's very very young for her to get diagnosed with lupus because normally the people that get diagnosed with lupus they're pre-teens you know that's the earliest and I'm like whoa you know so that's when I really knew okay I got to put it to your hands Lord you know and I just looked at her and I just I'm like we going to get through this you know and I just remember I left the hospital and I caught um my aunt um I call my aunt not my makeup let but I called her and I was like told her everything that was going on and my auntie she reminds me a lot of my grandmother because that's her mother my grandmother is her mother and when I'm freaking out she's as gentle as a dove and she just told me I just remember her saying on the phone she's going to have a beautiful life it's going to be you know some adjustments but she's going to have a beautiful life and I just gave me so much peace so much peace um so much and um I just slow after that I just knew that I was going to get through it I knew I was like we're going to get through this and yeah and it was crazy because oh y'all it was crazy because the day she got diagnosed was May 1st 2024 and that is the month for Lupus Awareness I was like wow how how ironic and um yeah so that was just crazy already you know and I knew that she was going to be okay too but it was just like the emotions because you know it was like I was being God had placed me around so many people who had lupus already my mother that's number one and she she is one of the strongest women that I ever met literally you know just seeing all the stuff that she's ever been through with this illness and she just comes out like a warrior you know she's just so strong and she's never negative about it shout out to my mama but she's never negative and my aunt you know certain things I don't want to share but she has been through and she is so strong that woman is strong and then my the lady who does my eyebrows she has she has lupus strong you know I used to take care of a lady who had loopus who has lupus you know and they're okay you know they're okay so I was like she's going to be okay you know she is going going to be okay and so you know just after that she was hospitalized for 14 days they had to find out a plan for her she she was getting she was progressing just very well just after they found out it was like she was just getting better and better you know by the day and everything and then we eventually started walking cuz she she felt she just felt like she couldn't walk she was so weak and she just started started to eat and she just started to talk stuff again just like you know and um she she was okay and then I she got out the hospital um on Mother's Day and that was amazing the best Mother's Day gift ever and um yeah and she came home everybody was so happy and now she is doing amazing literally she's doing amazing um she's not my little petite anymore she is a little chalk chalk and I love it her little cheeks she her little cheeks she got so chunky and she's so confident in herself and she's so strong and I'm just like oh my gosh like it's like hard for me to say this but if you know if you understand and you know then you know but I'm like God nobody else could have handled this better than you baby that's how I feel she's so strong she's so you know she tells me all the time Mommy I thank you for being in the hospital with me every day she says mommy you were there for me and you never left me and it's just like wow like of course you know I wouldn't but she just when even when I even when she was out of it and she wasn't speaking and she was sleeping the whole time she knew and felt that I was there with her and you know and she's even closer oh my goodness she was a daddy's girl now she is a mama's girl she like I want my mama but yeah you know every you know everything's good she's doing better now you know and you know I know that she is going to get through this we're going to do the Lupus walk we're you know what I'm saying we we doing this you know what I'm saying and purple has always been my favorite color and my baby that's the color to represent Lupus Awareness so yeah I just want this video to help someone pay attention to your body pay attention to your children's body you know what I'm saying if anything's going on that doesn't seem right to you you better keep on fighting okay keep on fighting keep going to the doctor keep figuring out what's going on even if they don't know and they try to tell you something you know yeah this will help and that will help and this and you doing everything and it ain't helping you go back and you keep complaining and you keep letting them know you fight for yourself cuz nobody else going to fight for you okay and fight for these children cuz a nobody else going to fight for them but us parents so yes I just wanted this just wanted to share this with y'all and I hope you guys enjoyed this video you know and there will be more videos where we will be talking about more happier things and then there will also be some videos where we will be talking about getting a little personal but I just hope you guys like this video you enjoyed it can you guys do me a favor and like comment and subscribe and I will see you guys on the next video love you guys bye