Published: Sep 11, 2024
Duration: 00:02:20
Category: People & Blogs
Trending searches: lupus
questions about how my life is today after being diagnosed with lupus I can say it's a up and down thing you know some days I feel good some days I feel great some days I don't feel good at all it just varies like every day is different when you have Lupus you know you never know how the day is going to go um things that help me stay on track with my lupus is eating right exercising making sure I'm taking my medication making sure I take me time one of my biggest symptoms with lupus is fatigue I'm always tired I know I may not seem like I'm not tired because I make so many videos I post so much but I'm tired all the time and that's one um symptom of having lupus is fatigue you're always tired like some days I don't have any any energy that's struggling or adjusting with lupus one thing I can say is do your research find out what works for you find out what works for your body what works for somebody else's body may not work for your body there are different types of lupus I have SLE which affects all your organs so I definitely have to make sure I take care of myself I see my primary care doctor often I see my specialist often and I have a great specialist I mean she's always on top of it and sure you're taking care of yourself see your primary care doctor see your specialist make sure you let them know what's going on with you don't leave anything out even if it's the smallest thing don't leave anything out I have a great team a specialist since day one has been on it from my first visit she did test she started me on medications she answered any questions that I had and she just let me know that I'm going to be okay like you can still have a normal life you can still do everyday things it's just a lifestyle change yes the diagnosis itself is hard but putting in the work is not hard that's what you have to do just every day get up take your medicine Eat Right exercise do anything that's going to relax your mind stress is a big trigger when you have Lupus stress causes slurs so you need to find things that's going to bring you peace relax you relax your mind you don't want anything that's going to stress you out so stress is a big trigger with lupus overall I'm doing fine I'm doing fine because I take my medicine I see my primary care doctor I see my specialist I have regular visits I'm doing things to keep my mind at ease I try to stay busy I stay active if you have any questions that you want to ask me feel free to ask I'm here to help in any way that I can